Well here we are, 8 months after my previous treatment stopped working. It's been 8 months of bloodtests, and high doses of Prednisone...and phone calls to groups, and paperwork being filled out, and faxed back and forth...mistakes being made and corrected. I was finally approved to recieve Cellcept for free by the Rausch company (misspelled I think). I've been praying and praying for this to come through for me.
Twilight took me into town last Saturday and we picked up the meds from my mailbox in town, a 6 week supply. The rest are being FedExed to the Dr.'s office in Los Alamos. I got the instructions on how to begin. It's a 20 day process of building up until I'm taking 4 pills a day.
Since Saturday I've been thinking it all over, and I've been way too chicken to begin. After all this time, I couldn't remember if I even wanted to be taking this stuff!! My anxiety level went up everytime I thought about it; I'm completely afraid of the unknown. I re-read everything about the drug, and possible side effects. Then I re-read all the statements on my Lupie board, both good and bad results. Seems like a 50/50 shot. Like life.
Here we go, Day One. I'll keep you posted. Some people have had excellent results for years with Cellcept, and I'm saying my prayers that I might be one of them.
1 month ago